About Us

Network ME is a now firmly established registered charity providing vital services to those suffering from ME/CFS in North London and the surrounding counties. Network ME is able to offer a comprehensive service to all those affected by ME/CFS, helping to alleviate the suffering and feelings of isolation and enable the sufferers obtain early diagnosis and treatment.

Network ME is here to raise awareness about ME/CFS and support sufferers and carers. We do this by:

• Telephone support and advice
• Information packs and quarterly newsletters full of advice, news, recipes and contributions from members and other ME Groups.
• Provision of information to BME Groups through the translation of our leaflets into eight languages
• Advocacy
• Outreach Support
• Well-being classes
• Drop-ins
• Phone Buddy scheme
• Volunteer recruitment and training
• Monthly social meetings at local venues
• Evening presentations aimed at providing the latest information to our members
• Garden parties
• Quiz nights

If you live in London or the Home Counties, you may be interested in joining in the following activities run by Network ME at Community House.

Well-Being Class – Mondays 2.30 pm-3.30 pm
Drop-in – Mondays 3.30 pm-4.30 pm: Socialise and chat over a cup of tea. Swap successful remedy stories; see what has worked for others, a time for you to relax and unwind.

These activities are currently being expanded to include further sessions on different days. Please keep an eye on the site for updates to these activities or any latest developments.

Outreach

Our Outreach Worker is available for home visits to those who find it difficult to travel. Please contact Andriana Vasiliadis for an appointment.

Fundraising Events

Network ME is not a large charity and as such we rely on our members and volunteers to help keep the organisation running. Network ME has an uplifting, warm and familial atmosphere. We welcome members wholeheartedly. We listen to our members and in return we gain a crucial insight into what ME/CFS actually does. It affects not just the sufferer, but the infrastructure of family. Our aim is to reach out to all those affected and offer bespoke services dependent on the sufferer/carers needs.

Members and volunteers of Network ME help organise and run our fundraising events. These include:

• Annual garden party
• Annual quiz
• Bring and Buy sales
• Well-being days where members can enjoy alternative treatments at a discounted rate.
• Craft sales

It is worth checking our newsletter or website for updates on our latest events. Also please check the website or newsletter for the latest information on evening meetings which are facilitated by guest speakers ranging from medical practitioners, alternative therapists or the legal profession in relation to information on disability allowance. Any suggestions for a topic for evening meetings are warmly welcomed.

Book and Audiovisual Library

Network ME also has a book and audiovisual library. Books and tapes are available on loan to our members only. A deposit of £5.00 is required.

Medical Consultants

Network ME also holds a list of medical practitioners and pediatricians who treat ME/CFS. Please contact the office to find out your nearest consultant.

Alternative Therapies

We also provide subsidised initial treatments for alternative therapists to our clients who have been members of Network ME for 6 months or more. Therapies include:

• Reflexology
• Indian Head Massage
• Hand and Arm Massage
• Reiki
• Aromatherapy
• Homeopathy
• Spiritual Healing

We use highly qualified Therapists who have an understanding of the nature of ME/CFS. To get a taster for these therapies, you are welcome to join us at one of our well-being days where you will experience first hand the benefits of these treatments. Keep an eye on this website for further information.

If you have any ideas on other alternative treatments, please contact the office to let us know.

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